I wrote this over two years ago. Goodness, if I only knew where I would have been now.... lol Hard words to remember sometimes..... Even today I needed this reminder. Though I know daily that I have two precious and shining rare gems, at times I get bogged down by the nitty gritty of the life chosen yet blessed with.
"If you have a child with any special needs, treat them normal.
If they have something obvious like hearing aids, treat that as a super
power when they ask. Though your heart
like mine may have thoughts and worries about the future and even the
present, don't treat them different. We all are human either way. Sad
there are people who don't see it like that but keep on living as if all
do. Strive for it. Remove those from your life who don't love and
accept you and your child(ren). Negativity won't help the journey.
Embrace your journey as a gift. Because it truly is. Hard day's won't
make it easy to see it like that but it will make the good days all the
more special. Fight with all your might for your child but rest
sometimes so you don't get bogged down and discouraged. Grieve over
losses and setbacks but don't stay there. Don't allow yourself or others
to get hung up on what your child can or can't do. Hard but you must be
positive. Be realistic but be optimistic. Few will understand your
journey and sometimes you will envy them for it. Don't get caught in
that either. Embrace your journey. Enjoy the small things. Few in life
enjoy the little things. Don't be like that. The little things will make
the big things easier to bear. As the movie Catwoman shares, When Halle
as Patience talks to the cat lady, Ophelia tells her, "It is a blessing
and a curse. You will often be alone and misunderstood but you will
experience a freedom other women will never know.... You spent a
lifetime caged, by accepting who you are, all of who you are, you can be
free, and freedom is power." At the end of the movie, Patience says,
"Freedom is power. To live a life untamed and unafraid is the gift that
I've been given, and so my journey begins." That movie got poor reviews
(I like it though.) but until today, those two lines didn't really
resonate with me. Not like this. Yet even on our own journeys' it's the
truth. Our lives are a blessing and a curse. We will not get to have a
completely normal life like many. However we also have freedom. Crazy I
know, I didn't see it like that till today. We may look and feel older
then others our age but yet our children are setting their own
standards, unlike the world. What the world needs to do is not try to
make our children fit in their mold, the world needs to fit in ours if
they will ever experience any freedom. Yes our journeys' are a blessing
and a curse. Some days I hate it. Yet I wouldn't trade it for the world.
Our children teach us what life should really be about. I get
frustrated sometimes with the being alone and misunderstood part but yet
we have had so many blessings too. Our journeys' truly are a blessing
and a curse but I'll take it. Some of the best people who have walked
with me I have never met face to face but they walk with me either way.
For many it is this way. We sometimes wish things were different, it
would be us suffering instead of our children. Yet our children are the
ones who truly teach us how to live.
http://www.caringbridge.org/visit/littlechristina/journal/view/id/51c15f7b6ca004654205175d"
Blessings!
~ Special Momma ~
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