“But rains pour down upon us, storm clouds darken the skies and we get lost in the storm. Have you been there? Wandering in the darkness, crying out only to be greeted with utter silence?"

~ Lesley Hitchens ~



"God puts rainbows in the clouds so that each of us in the dreariest and most dreaded moments can see a possibility of hope.”

~ Maya Angelou ~

Wednesday, August 30, 2017

#WhatYouDontSee

That's a hashtag going around through a The Mighty video about depression.

Yes, I'll come on here and admit that's one of my struggles.  I have some others but that's irrelevant right now. (I mean who DOESN'T have struggles?) My tendencies toward depression is NOTHING like it was when I was 12-13, however I can't lie and say it's not there.


Here were the three that I know I face...

How painful it is when people dismiss your problems or aren't respectful of your feelings.

The daily battle of negative and intrusive thoughts constantly in my head.

The difficulty it is to listen to the right voices, the ones that want to help you, rather than the ones that stigmatize or judge.


That's what this storm has taught me..... It has shown me so much and honestly it's eye opening yet also stings, bad.....

I won't get into more of that stuff specifically but honestly, the struggle is real....

Looking up at the night sky makes me think of my heart right now being in that deep, dark abyss with just a small beam of light shining out with that light only visible to those willing to see me. How the moon can be seen by everyone, so few can see the light within me. The small light is best seen when it is dark, hence why you can see stars at night when it's dark. Yet so few are willing. Those who do, quickly flee in terror over what they see or hear. I guess my wounded and scarred soul is a fearsome beast. Yet nobody sees the tears or the ache.





Yet I know I should watch how I say things, I don't regret that I'm very open with what I think and yet am blunt about it. Yet when it comes to things like this, even there I'm silenced.... Often by those who promised to listen.... 





Today the chapter on Dallas officially closed. Unless a Lazarus coming back from the dead miracle happens, the funeral was today. I fear the future honestly. I fear who will take over seeing my kids.....

I need reassurance and love and I have neither. Or at least it feels like it.....


This whole thing has me between two huge boulders with the cliff edge under me..... That's how stuck I feel with this storm.... This is where insurance put us....



Top that off with this morning I learned of another chiari patient died. It's the third one I know of this week. Two of them were from chiari complications.



So yeah.... I've also been told again that I need to be quiet and quit posting stuff anywhere.

#WhatYouDontSee



The battles I face, I share to help others through theirs yet it's also honestly therapy in a way for me. Oh yeah, I've been told I need professional help too more than once in the last couple of weeks. Well, if people want to pay that copay then go right on ahead. All they will do is suggest better coping ways beyond writing. It's not like they could change anything that has happened, is happening or will happen.

Though I also confess to you all that finding the silver lining, the rainbow in this storm has proven difficult. Yeah, I am thankful we still have insurance, yet so much unknown, so much uncertainty, so much fear.....

Fear....


That's exactly where I am. We all get afraid of things at one time or another, even if we won't admit it. Yet when I read where more with chiari are not surviving, or where three cranio kids also died recently, (Medical related deaths all were) then what else are you supposed to do? I'm always told to "give it to God" and those people that tell me that walk away, not willing to listen when I need it.


Really......


And yet so many wonder why I post what I do about how we as the church should be towards one another. I saw more "church" among strangers on the news helping each other in Houston then I see in American church pews!


Yet many wonder why writing is my therapy.....
My December sure has been my song for this storm and also Audiomachine - Requiem of the Night

Probably not the "best" music but it is what I feel...... The longer the storm goes on, the more silence I hear and it's very loud to the point of deafening.....


Yet at least I know God has not left..... Even though it's hard to hear Him right now too.... I know eventually this storm will have a purpose too. That's the silver lining.

I have called you back from the ends of the earth, saying, 'You are my servant.' For I have chosen you and will not throw you away.
Isaiah 41:9



Blessings!

~ Special Momma ~

Friday, August 25, 2017

Do we really?



Are we really willing?







This has been making it's rounds on Facebook again. It's not the first time or the last time I've seen it. Yet are those words true? We all share that stuff, saying it's true, "Yes I'd do that!"



Do we really though?







I gotta be real with you.....



I'm broken and lost guys.... I really am....





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My core feels like it's been ripped out of me, yet so many just stomp on it......


Or at least that's what it feels like.....



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Look into these eyes. What do you see?


  
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Does one bear the soul and one look "normal"? How would you describe the "normal" one? What feelings or emotions do you get out of them? Be honest now.

Is it something like, broken? Emotional distress? Shattered? Void? Empty? Shattered? Stared at the eclipse too long recently? :joy:

No seriously.... The brown one is mine. Yet for the most part, it isn't seen at all as being one who has suffered, one who has been broken, one who has heard way more in her life than I ever should have.






I fight because I have to... Because I have no choice... Because if I don't, then I have failed. If I don't fight, who will? God gave me my kids, it's my job to get what they need.... Fighting for the last 30ish years is the only way I have survived, though even survival almost didn't happen at times..... I have learned that I can't  give up, no matter how bad it gets.... Even to a fault..... Losing a battle or war is the hardest thing to swallow.



Though I can't do it all alone, even though I usually do........
 

Yet I think if we all took the time like that pic said:




I think that would make a HUGE difference..... I'll get more into that in a bit. I have much to share, good and bad.

We have been having a really hard time with insurance bureaucratic stuff for a good month now, and it came crashed down August 11th and has been continuing since. Insurance through employment changed as of July 1st. All of the fighting, advocating, hope, paperwork, and it all crashed down August 11th.... Yet really of all of those that have asked me either how I'm doing or more specifically about the insurance, only two have listened and stuck with me as the days have dragged on......

I admit I've been really down about it too... I really have. So few words have been of support, most have been telling me to get over it, even those who I thought would support, want nothing to do with it. I'm ignored, I'm told to get over it, I'm told to quit griping, I'm told to suck it up, I'm told I'm a bad parent because I can't afford to pay out 60% plus for everything in Dallas now, and more... How the heck are we supporting people behaving like that? Most of what I have heard this negative stuff from are people within the church!!!! (Not saying MY church but "the church") Fellow believers, those who claim to follow Christ!



Last I checked, Jesus didn't teach like that!

This is what I have to say to health insurance companies too: Don't tell me you care about patients, families and all of that if you really are full of yourself and don't even know a dang thing you are talking about. If you know nothing about the healthcare world and what it really is, you have no business in it. Period! That goes for anyone down to the office staff taking in patients all the way up to the fat cats in politics and insurance companies..... It's amazing how much power insurance has in who you can and cannot see, what procedures you can have and can't have done and when, and really if you live or die. It's BS! Sometimes the hospitals/clinics are just as bad if not worse......




BUT!

While driving to Celebrate Recovery, August 17th, I saw a sun dog and a sun halo. Sundogs have always been a sign to me of my grandpa. A sun halo has been a sign of God reminding me to "hang in there" as I was going through a bad storm when I remember seeing the first one when I was 19. God whispered then to hang on a bit longer. That's how I see them now. I saw both together just before walking into CR that night. I was told before the worship time that I would be leading the adult women of family dysfunction group and when it starts. Soon after Worn was played that night also during worship time.... Pierced me as that is right where I was......

Later that evening, I got to thinking that this whole insurance storm has been a test of my faith due to that I am soon leading a group of women. I sound crazy but for those of you who have been through it, know what I mean. I'll say this though, If there was a grading system to get into Heaven, I'd pass with a D- likely. lol Faith requires action and belief.... Sometimes the hardest to keep in the storms.....

This last Monday the battles and the brick walls started all again..... So did the tears. I swear you guys, I have cried more tears since August 11th then I even did when I lost my middle child in miscarriage..... Yeah..... I have not had tears since though at least... That's something right???

Tuesday while I had to get a filling done, (joy) and some song lyrics popped into my head out of nowhere. I had not even admittedly listened to this song in a while. 







Then on the way to do an errand after the dentist, I saw this. One church sign, both messages.








I just wish I could have gotten the chance to tell everyone in Dallas goodbye..... The doctors, nurses, staff, Ronald McDonald House..... All of that is gone.... I want to see how this storm is used already though.... I'm done hurting from this mess......Yet I blame insurance for it all....



Goodbye to this skyline......


The pain is real guys.... It may sound really stupid to some but it really is real..... 10 years.... So much talk though of that I just need to let this go, I need to suck it up, I need to pay up or shut up, etc.



So....... Keep thinking of that first pic that's been going around Facebook.


Those pics of the eyes.... When you really look at someone, do you see their soul or do you just see the shell? Most of you would say the shell right? What if I told you I and many others in this world are this.



BUT we really feel this: Our soul, our heart speaks yet so few hear.....


Or this:




Are those words said then to silence people really that encouraging? Is that what you want said to you when you are in a storm? Think about it....






Yesterday I posted on FB, "The church is so often focused on the "lost" that they overlook that there are many who are not lost but are hurting and struggling. We overlook that, or worse, hold judgment against them and sometimes that causes those who were saved to step away from faith.... If we can't be there for those hurting, how are we to keep those who are also lost?"

As the words from a lady who commented said, "Just a reminder, not all is due to everyone else having it together and not reaching out but everyone having their own hurts and difficulties they are trying desperately to survive. Do we as the church need to be better? Well of course we do. But I try to remember that I will not be fully redeemed until Christ comes and I receive my new body that will not be fighting constantly with my flesh. I feel like Paul most days when he says I do what I don't want to do and I don't do what I need to do.
I think one of the biggest tragedies is the game we play on social media that our family is all together and we don't have a care in the world. It's makes everyone feel like they are alone and that no one cares when in reality, the nice accolades and filtered pics are a mask of what we want our lives to be.
I feel like we are barely treading water but if you look at my social media you won't know that. At the same time I want to enjoy the good moments and share them with family and friends that I don't live close too. Treading our own waters of difficulties has made me not reach out to anyone like I know the Lord calls me too and I hate that and want to do better. May the Lord help me in it.
Pls know that I pray for you and your sweet babies and pls forgive me for not encouraging you with that."

I replied, "I'm just worn with this whole insurance storm and have seen that the less I talk about it, the better it is because I know those few who are listening are probably tired of me talking about it. Yet it's something new with it every day..... I"m afraid my kids will suffer for it yet the silence is deafening....... Even in storms past, the silence has been deafening, it's just the older I get, the louder that is"

Yet she also said that she is encouraged as a mom by my fight for my kids.

The point of that FB post was that too many are not quick to listen but are quick to judge or silence those around them...... We need to be quick to love and show compassion instead...


Today while talking to a mom who is working on a study with me, I told her what I wished for the most right now besides keeping the team we have, is us as Christians to be there for one another like we should. It hurts when you feel betrayed and isolated from those who should support you the most. I told her that's why so many posts in the blog about it. What happened to us being Christ like? I told her that night on August 11th, I had a dear mom who has been on this medical journey and then some, who came right into it with me when we started ours and has been there since. I was up messaging her till 2am, crying, yelling, sharing fears, venting, you name it. There were words said that I felt like I needed to say yet I know the talk we had would scare off most people. Yet at least I had that. I told the mom I met with today though, where is that within our churches? Where is the support? Why do we feel like when our world crashes (sometimes for the upteenth time..) we can't turn to anyone, even within our own faith?

Now perhaps there are a few we can, but then how do we overcome the fears of rejection and judgment?


When will we all take our masks off and start being real? Not just face to face but via social media too. When will we quit faking it?


Where's the support and discipleship in that? If we ourselves refuse to reach out to others who we know are in a storm or likewise us in the storm refuse to reach out to others to talk, how are we to be built up? How are we to feel love? How can we feel love when we are constantly rejected or judged?

How are we to be like Jesus and comfort others?

Think on that. I will too.... And may I do better at giving this journey to God, as I should be doing....... Just Be Held is what I should be..... I give and take back and give and take back..... I can't seem to help wanting to control everything going on around me, even in the storm....


Blessings!
~ Special Momma ~

Wednesday, August 16, 2017

Do we really show love?

Romans 12:9 says Don’t just pretend to love others. Really love them. Hate what is wrong. Hold tightly to what is good.

But do we? Do we who claim to be Christians and love Christ REALLY believe this? Think about it.

Can you step out and see closer in to the world around you too? Now a week in a mission field in another country or state or even county is about 2% of our life for the year. That remains 98% of our time in our own country, our own neighborhood, much of that within a fifty mile radius of where we sleep at night, right?

I can't help but think on this. I heard that verse Sunday morning while there was testimony about some kids who went to Nicaragua on a mission trip.

I need to do better too about this myself here at home, but one thought I have always had about foreign trips is, what about those at home? Are we all so caught up in how impoverished other countries are that we overlook the impoverished both physically and spiritually back here in our own backyards?



An example is this video I saw the other day:





That's what's wrong with faith today. Where is the genuine love and compassion? Where is the "not going to give up" at? Is it any wonder that so many are outcasts, despised, in prison, homeless? Because they have never had anyone to genuine love them. They have never felt unconditional love. Why do we who claim to be brothers and sisters in Christ treat each other worse than we would a stranger on the side of the road needing help changing a tire? We show strangers more compassion than we do those within our own towns! Instead of seeing someone who is struggling and just ignoring them or worse, gossiping about then, stand up and see what that person needs, without judgment.



We I would dare say, are one of the most impoverished and dying from starvation spiritually than most of the nations out there in the world! What are we doing about it?





I will point out that this isn't about asking for money, stuff or anything else but simply for people within the church to reach out to those who are spiritually starving and honestly need someone to love on them without barriers, church without walls, church without "I'll do this if you do that" mentality. However the biggest barriers I think are those among economic classes.


As shared by a friend on Facebook, B posted Sunday as well, "The inconvenient reality of compassion: While discussing James 2 this morning in life group, the issue of poverty and "the poor" came up. There was some comparison of the poor here to the poor around the world, and the assertion that many American poor are that way, to some extent, by their own choosing, or purposely as a way to "game the system" (is that a phrase?). It's hard to want to help and show compassion to people who put themselves in a position of need. But if we're going to claim Christianity, and show the love of Christ to the world, then their needs and what we can do to help should be the only two points of interest. How they got where they are, or their attitude towards our help, or their willingness to change their ways don't matter. The love of Jesus is unconditional towards us. We didn't earn what He freely gave us, we often don't show gratitude for our salvation, and we chose, and continue to choose actions (sin) which require Help that we can't provide for ourselves. It's a good thing that when God looks down at us, living our lives marred by sin, and disgusting compared to His holiness, that He doesn't roll His eyes and shake His head, like we're some bum with a cardboard sign. Because we are all about as worthy of Salvation as the bum on the side of the road is entitled to my help. That's Christianity; helping BECAUSE it's needed, and not worrying about WHY it's needed. And that is a very inconvenient idea, especially in our Americanized church" B went on to say in the comments, "I do think the church should be a place and group that transcends the effects of social class, but unfortunately, often you still find the "us" and "them" cliques"

Now I gotta say those cliques go way beyond just money. They go to where you were born, where you went to school, what you wear, what you say, what you believe in, and so much more. High school anyone?


So that brings me to this:


Now I'm going to get a little political here. Bear with me. What about those who say they are "right to life?" How do they treat others around them? Respect is only deserved while an innocent baby in the womb yet we throw all of that out the window after they are born and tell the families "Too bad you are on your own but you are going to hell if you get an abortion."

So wait a minute, aren't most of these against abortion conservative Christian? YES! So then, where's the compassion commanded of us for those "less then us" if we condemn those who also do abortion? (No I am not pro-abortion)


Okay so then let's say you are pregnant with a child who has been just diagnosed in utero with Down Syndrome. (Or insert any other life changing diagnosis) What is that mom likely to hear? "No quality of life. Abort it!" "Iceland eliminated Down Syndrome through abortion you know." "That child will be a burden, abort it." "What? You are thinking of an abortion? How dare you!" "You better not have more kids after this because they may be defective too!" "That child is innocent and abortion is murder!" and more..... Think I'm joking? Go ask any special needs mom and they will tell you all they have been told..... Now, say that child is born and does indeed have Down Syndrome or any other "special need", what will you say now?  "You had this child, deal with it! Don't ask for help!" I know people within churches even talk like that because I have heard it. Is that the right attitude?

James 2:1-9 which says:



"My brothers and sisters, do not show prejudice if you possess faith in our glorious Lord Jesus Christ. For if someone comes into your assembly wearing a gold ring and fine clothing, and a poor person enters in filthy clothes, do you pay attention to the one who is finely dressed and say, “You sit here in a good place,” and to the poor person, “You stand over there,” or “Sit on the floor”?

If so, have you not made distinctions among yourselves and become judges with evil motives?

Listen, my dear brothers and sisters! Did not God choose the poor in the world to be rich in faith and heirs of the kingdom that he promised to those who love him? But you have dishonored the poor! Are not the rich oppressing you and dragging you into the courts? Do they not blaspheme the good name of the one you belong to? But if you fulfill the royal law as expressed in this scripture, “You shall love your neighbor as yourself,” you are doing well. But if you show prejudice, you are committing sin and are convicted by the law as violators."

Okay, Now let's go farther.

What are your genuine thoughts of those on Medicaid? What is Medicaid to you?

Do those who are on any government program like food stamps, welfare, medicaid, social security, medicare, SSI, SSDI, etc. worth less to you than those who are not?

Which is worth less to you? The lower working class in poverty, the single mom of kids with many daddies on welfare or the upper class who are rich and on no aid whatsoever?

Be real with me. Don't sugarcoat to make yourself look good. Be honest.

Now let's get really into this: How should Christians see these people? Do they see and treat people equally or not? Why?

If you don't treat people equally, why not? No BS answers now, I want your heart answers.

I dare you to say what you think. Especially since a good handful of locals here think I'm a leech.

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Did you know everyone who is on any form of aid, despite reason or length get accused of abusing it at some point in it? Or of being leeches? Even the foster parents who's DHS custody kids in their care get it. I know of one mom who fosters kids and got nasty looks because the foster kids get WIC.
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I've been accused of gaming the system and being a leech, even by people in my church because my kids have SSI with Medicaid as secondary insurance.

Little do they know..... Yet when I explain what Medicaid really does for them, I'm blown off. Medicaid pays for therapies (ST, PT, OT) that primary doesn't, and so much more.....

I've even been told that I better not have more children lest they be leeches too. Yes, by those even within the faith that claims to believe in Christ.

By the way, we pretty much get no other help, not by family, not by society and not by the government. Nobody helps us but ourselves. Hubs works full time, I handle almost everything when it comes to school meetings, appointments, travel to said appointments and scheduling for all along with procedures.... Yet I'm just a leech.....

You would be shocked by how rampant Christians proclaim those ideas and how looked down upon one is if they are not middle or upper class.

Now all of that leads to this:

That 98% that you spend within the confines of your community, how are you impacting it? Are you truly helping others or are you out for yourself? Are you snickering and sneering at others with your buddies over how someone looks or because they are on food stamps yet pretend to show love like Christ on Sunday mornings?

Are you one to sit there in the pew and say "I am like Christ because I do this, this and this! I'm doing fine!" yet condemn those who are not as well off as you for whatever reason it is?


What do people want in a church then?


They want to see compassion, friendship, commitment, love from the heart. Real love, not the "I love you but..." or the "I love you because I have to but I want nothing to do with any other Christ like requirements." They don't want someone to avoid them because of what they look or dress like. Overlook all of that. Overlook that they talk funny, overlook that they are not from your small town. Overlook that they honestly sin differently than you.

Jesus Christ came for everyone and died for everyone, from the serial rapist and killer of children all the way to the one who tells white lies once a year yet otherwise "does awesome deeds and behaves so well."

So what are you willing to do to break those barriers and REALLY be like Christ?





You know the saying, "You catch more flies with honey than with vinegar? Though I think for each cup of vinegar, it takes two cups of sugar to sweeten it, so that would make three cups of honey? 
Dang, no wonder people can't handle me.... I'm too spicy. I'm like a habanero  pepper dipped in honey. I'm sweet at first than once people feel the heat, they can't handle it. Okay, so can I then just dump that on some people and just say I was being sweet and tangy while passing on some James wisdom?



Okay so maybe not..... Let's keep praying though for ourselves and those around us, Mmmkay? Let's have less judgment and cliques and just tear down those walls. It's really that simple.


~ Special Momma ~